Update: See now the general reference collection Standards, Standards Bodies, and Healthcare Initiatives:
- ASTM Committee E31 on Healthcare Informatics
- CDC Public Health Information Network (PHIN)
- CEN/TC 251 Health Informatics
- CEN ISSS eHealth Standardization Focus Group
- Clinical Data Interchange Standards Consortium (CDISC)
- Clinical Document Architecture (CDA)
- Consolidated Health Informatics (CHI) Initiative
- Continuity of Care Record (CCR)
- Digital Imaging and Communications in Medicine (DICOM)
- Electronic Common Technical Document (eCTD) for Pharmaceuticals
- Guideline Elements Model (GEM)
- Healthcare Informatics Standards Board (HISB)
- Healthcare Information and Management Systems Society (HIMSS)
- Health Insurance Portability and Accountability Act (HIPAA)
- Health Level Seven (HL7)
- Integrating the Healthcare Enterprise (IHE)
- ITU-T Study Group 16
- Logical Observation Identifiers Names and Codes (LOINC)
- OASIS International Health Continuum (IHC) Technical Committee
- Open Electronic Health Record Foundation (openEHR)
- Structured Product Labeling (SPL)
- Systematized Nomenclature of Medicine (SNOMED)
- Web3D Consortium Medical Working Group (MedX3D)
[June 20, 2000] Brian Bray posted an announcment and call for participation in the DocScope project -- a 'Standard for Physician Friendly Medical Records'. "DocScope will be a free medical information tool that is as natural and easy for physicians to use as the spreadsheet is for accountants. The software products produced as a result of this project will be made freely available under the GNU General Public License (GPL) and/or other open source licenses where appropriate. The tool will enable physicians to: (1) view standard medical records, (2) create custom views of the information to match personal needs, (3) structure and organize this information, (4) include rich text and multimedia components into the medical record, (5) create personal forms, templates, and boilerplate text for data entry, (6) sequence data entry, analysis, and viewing actions, (7) add customized behaviour through high-level scripts, (8) extend the classes of information stored, (9) integrate the record with data sources and software agents, (10) securely access the information anywhere, anytime, including mobile devices. We plan to eventually operate the project bilingually in English and French using automated translation tools and manual translation. While automated tools are far from perfect, we hope that this will enables wider participation..."
"This project is enabled by the convergence of health care standards and open source tools on the Extensible Mark-up Language (XML) document format for information interchange. This convergence has created an opportunity for applying commonly available tools to the problem of patient records to deploy systems that are simple, transparent, flexible, and standards based. Specifically, XML is core technology that: (1) is the basis of HL7 version 3; (2) is the basis of the European prestandard prENV 13606 (CEN TC.251) -- the prENV 13606 (CEN TC.251) (pre)standard already has a complete definition of a medical record defined in XML terms; (3) has a growing body of tools, both proprietary and open source; (4) has 'universal viewers, Netscape Navigator, Microsoft Internet Explorer, and open source Mozilla; (5) has unlimited extensibility through standard and custom schemas. A conceptual diagram of the proposed architecture for DocScope is [provided in the project white paper]. In this model, a patient record is conceptually a file in XML format. The file represents an object model that can be manipulated using the Document Object Model (DOM) Application Programming Interface (API). All of the processing blocks in the diagram transform XML input into XML output. Many of the individual transformations are quite simple and can be easily expressed using a variety of programming languages with implementations of the DOM API. Conceptually, data from the Electronic Health Care Record (EHCR) is filtered and transformed based on the users current view and access rights. Style sheets and further transformations determine how the structured XML information is presented on the screen and in reports. Physician input is via forms and rich text controls sequenced by scripts. Input event generate transactions -- expressed again in XML. Transactions can result in both changes to the EHCR and triggering external events. The transaction processor can accept transactions from external sources as well. . ."
References:
DocScope vision statement: "DOCSCOPE: Physician friendly standard medical records." PDF version; also in French
Health Informatics - Electronic Healthcare Record Communication Part 4: Messages for the Exchange of Record Information. PT 29 EHCR-ME (ENV 13606-4).
See also: Health Level Seven XML Patient Record Architecture
See also: ASTM XML Document Type Definitions (DTDs) for Health Care
See also related XML design/development: Contents listing for "XML and Health Care" - XML Europe 2000 Conference: http://www.gca.org/papers/xmleurope2000/rel/sess17.html; also text listing
See also: "National Library of Medicine (NLM) XML Data Formats."
See also: SGML Initiative in Health Care (HL7 Health Level-7 and SGML/XML)
